Tag Archives: me

So I’ve got cancer

I found a small lump in my breast, it was tender so I went and saw my doctor.  He sent me off for imaging, and then I saw a specialist who sent me off for a biopsy (that REALLY hurt).  Then I was told I had a very small (8mm) cancerous tumour in my breast.  I’m now an official member of the, “You’ve got cancer” club.  I’m not impressed.

I’ve found the cancer so early that I probably only need surgery, radiotherapy and Tamoxifen to treat.  This all depends on what the surgery and subsequent biopsies show really.  It’s a fun environment of, “Do A, then possibly do B or C depending on results of A”.  Being a big fan of plans, I plan to work out what is going to happen, how I will manage it, and what support I need.

This is a blog post (which may be updated as more info comes through, or new posts added, I’m not sure), which will outline what I want and don’t want over the next 6 months (as a starter).

Things I want

  • To keep working as much as possible
  • Snuggles
  • Chocolate
  • Plans
  • Shoulders to lean/cry on
  • Having meals cooked for me for those days I don’t cope
  • Understanding
  • Conversations with people who have survived cancer

Things I don’t want

  • Advice regarding natural therapies for cancer treatment
  • Being treated as if I’m going to fall apart any second
  • Being told to take time off work

Kvetching circles completely apply here.  This is my condition, my body, my issue.  Do not make it about you, do not make it about how you can feel better that the roll of the dice went badly at my end.  I have enough to deal with, without you making this about you. (This is not currently directed at anyone I’ve told, this is just case it needs saying).

I will continue to work, I will blog, I will study, I will cook, I will yoga, I will … because I enjoy these things, because they’re good for me, and because life goes on.

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My feels, and why I don’t really talk about them

I’m pretty sure I have feelings, after all I get happy, sad, angry, forlorn, depressed, stressed, etc, but I don’t often talk about them – to anyone, with the occasional exception of my husband (and only one of said husbands, the other gets the high level stuff that everyone else who asks how I’m feeling tends to get).

There are “good” reasons for this, as in my childhood and adolescence primed me to be someone who struggles to communicate and understand how I feel about things at any given moment.  Childhood and adolescence are also known as our formative years, for very good reasons.  We learn how to deal with the world around us, what things are appropriate to do or to avoid, how we should communicate, what we should communicate about, how to react to things, etc.  Clearly major events during our childhood and adolescence impact on our formation as people, both positively and negatively, and those impacts last throughout our adult lives.

Now that I’ve given some background, let’s go back to me.  When I was three and a bit, my mother had a stroke and I assumed adult responsibilities in my family – which mostly involved being responsible for my sisters and providing emotional support to my dad.  Three year olds don’t actually have a very good grasp on what it means to be an adult.  I wasn’t sure how to emotionally respond to this, so I didn’t.  To an extent, this was my normal.  I didn’t know anything else, it was just something I lived, and I’m not alone in this, children who end up translating for their parents when they family migrates or flees to another country, or children who have caring responsibilities for their parents or siblings have similar issues I imagine.  Their experiences are likely to involve more trauma than mine, but my experiences have impacted me as an adult.

Combined with that is the general Australian reticence to talk about emotional things, a situation captured in “she’ll be right mate”, and my fractured relationship with my mother in the last few years before I moved out of home.  My parents, the adults I spent the most time with as a child, were themselves damaged by their own childhood. My mother’s biggest lesson from her childhood was that children lie (which is epically fucked up), and dad’s (though he hasn’t said this to me) was to be very careful in what he shared lest it be used against him.

This did impact my ability to share with my parents, my father often seemed awkward (and he still is) when feelings were discussed – apart from the high level stuff such as “I got angry when …”.  My mother didn’t believe me, and certainly didn’t believe me when I told her about serious things like being sexually assaulted or harassed at school.  She never said this until much later in my life when she apologised to me for the impact this had on me, I felt that I couldn’t tell her things, so I didn’t.  I envied my friends who had different relationships with their parents, where they could talk to them about things.

Before I moved out of home, my mother had taken to “talking with me” which was more her talking at me while I did my best to remain calm and not get upset.  Our relationship immediately before I moved out of home was incredibly toxic (it has since been repaired), and I felt that even showing the slightest bit of emotion (usually crying because the words she was using I felt were to wound), was to let her “win” whatever battle we were currently fighting.

All of this combined with bullying at school when we moved to Bendigo, because I was different to everyone else, means that the safest route is to not show much emotion, to not talk about it, and to sort stuff out myself.  Sorting stuff out myself is slow, slightly faster if my husband is available, but as he’s suffers from depression himself, that’s not always an option.  I know I avoid talking about me by talking about all the interesting things I’ve learnt, read, or seen.  It’s easier to be interesting than it is to talk about how I feel about things.

There isn’t much of a way forward in this that I can see.  The defensive mechanisms I developed as a child are incredibly hard to undo as an adult.  I know it is possible to relearn behaviours, but there needs to be motivation to do so and right now I don’t see a need.  I’m doing mostly ok right now, apart from my work being incredibly overwhelming, and feeling that I’m juggling too many things (which given the number of things I’m juggling is not surprising).  Right now, I’m doing as well as pretty much anyone else in my situation would be.

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Being angry (resurrected)

Kindly supplied by “e” who had this post in their feed-reader.  I don’t know who e is, but I owe them a drink.  🙂

 

As promised, a post on anger.  This is completely out of my head without any supporting psychology theory exactly, though I suppose I could go and find some somewhere.  Anyway… anger and my experience of it.

I can confidently say that my role models for dealing with anger as a child were not very good.  I don’t know any people who had good conflict, frustration, or anger role models as children.  My parents, like many people had troubled childhoods (which is a nice way of saying that for the most part both their childhoods were incredibly traumatic), and a lack of good role models in their life to deal with conflict, frustration, or anger.

I think that this lack of experience in seeing anger as another emotion, much like being sad, happy, concerned, worried, silly, etc, meant that my ability to be angry did not mature as my other emotions did.  I no longer am sad as I was as a child, or a teenager, I am not longer happy as I was as a child… but my anger is… well… immature.  My first response is to just go quiet and cold.  To be angry, but not even to be able to express it.  Anger was avoided in my family, both my parents would be angry behind closed doors, failing to hear each other (I thought), and eventually one of them, usually my father, storming out of the house and going for a walk.

When I moved out of home I unconsciously resolved to communicate differently with my partner than my parents did with each other.  It certainly helped that I ended up in relationships with people who generally communicated with a similar language set and meanings (my parents do not seem to have the same dictionary when talking to each other – or perhaps it is an implicit/explicit communication conflict).  Anyway… although I feel I communicate with my partners better than my parents communicate with each other, and I manage to avoid conflict through miscommunication along the way, my initial way of dealing with conflict and anger was to avoid them as much as possible.

So when angry, I’d walk away.  I mirrored my father’s behaviour and his reaction to being angry.  I didn’t lash out physically or verbally, I’d retreat and go away.  Eventually (sometimes quickly, sometimes not) I’d come back and be in tears because I didn’t have a better response.  I felt guilty about being angry about some things, and justified but unable to explain exactly what I was feeling in others.  Part of that guilt I know is that women are supposed to be nice, good, quiet, biddable, etc creatures (not really human after all), who don’t get angry, because if we’re angry we’re bitches, shrews, shrill, uppity, etc. Part of the guilt had to do with being angry with people I loved and over things that were difficult for us to deal with at the time (my husband being clinically depressed for the first 9 years of our marriage for example).

When I was unable to communicate that I was angry, I would get upset.  Much like feeling stupid is something that upsets me, being unable to articulate (and therefore feeling that I can’t communicate, therefore am stupid), upsets me.  Feeling, as I did at the time, that I had to explain my anger/disappointment/whatever gently and carefully in order to not distress my husband added to the burden of dealing with anger and conflict, and made me even more likely to avoid it.

My husband was treated for his depression, we found the big wide world of polyamory, and having to deal with conflict and anger became something I could no longer avoid.  Polyamory challenges assumptions about relationships, forces you to look at the relationships you are currently in and assess the health of habits and behaviours that you and your partner have been wandering around in (well it did for us).  The relationships that we became involved in challenged both of us, and the way we acted towards each other, the things that we just put up with, the idiosyncrasies, and our avoidance of conflict.

It would be true to state that my first polyamorous relationship (outside my marriage) was with a high drama and high maintenance man and resulted in conflict with him and some of his other partners during the life of that relationship.  I didn’t handle the conflict, anger, or frustration well (I still don’t think I do), but I learnt a lot.  My counsellor was instrumental in helping me accept that anger is a valid emotion, one that is completely ok to have, and it is not the end of the world (or relationships) to be angry.  I learnt that if I can’t immediately articulate what I’m angry about, that it is ok (though this I still struggle with because I take a while to process strong emotions and often the whole thing is done before I have a handle on why I’m angry/upset).  I have learnt that I can talk about it, I can experience it, and it is another emotional response to stimuli as the others are.

As I have accepted that anger is ok, and a valid response, it has changed and grown into a different emotion than it was 6 years ago.  I am no longer guilty for being angry, though still struggle with whether anger is necessarily the best emotional response (not quite the same as guilt).  I also have a hard time processing some comments (particularly those I hear versus those I read) quickly, so am meaning deaf to comments that might otherwise make me angry until I process them at a later stage.

What is the moral of this story (apart from not write blog posts late at night because then you tend to ramble)?  It’s ok to be angry, and it’s ok for your anger to be the anger of a younger you.  The more I accepted my anger, the more it matured.

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Feeling stupid

There is this thing that I… hate… detest… suffer from… something… the feeling of being stupid.  I’m not sure why exactly I have a thing about this, because I know I don’t know everything, nor do I understand everything, and I’m also quite smart… but feeling stupid is something that sometimes really upsets me.

A case in point happened last week, while I was in a work training course.  We were doing a role-play of a real life scenario, and consequently didn’t have ALL the data.  We were provided with a three page summary of what was happening, and my team were the guinea pigs for this case.  This meant that our team was under the greatest pressure in the case study, we had the least preparation time for the two scenarios (they were back to back), and we’d only just been trained in the theory that we were practising.

Halfway through the first case study, I realised I had no idea of what was going on.  The team I was a part of seemed to have read a completely different case study to the one I had read, well that’s how it felt, and I suddenly felt cast adrift.  In feeling like I’d missed a major point or issue in the case study, I suddenly felt like I was stupid, which really upset me.  Upset me to the point of tears, in a training room with many of my colleagues, and members of my senior leadership team.  So yes, I was feeling stupid, upset and humiliated all at once.

It’s not necessarily about being wrong, because as I said, I don’t know everything, and I will be wrong sometimes.  I think it’s a lot to do with how I feel (I was exhausted at the time of that role play), the amount of stress I’m under, and how important my competence/image is at that moment.  Given how I’m still not feeling 100% sure in my current role, feeling stupid is a really big deal.  The added stress of nearly bursting into tears during the role play was extra stressful and extra humiliating.

I suppose that this really ties into some of the important (and mostly fucked up) messages I got as a child.  Image is important, very important.  Being smart was as important as looking smart (I’m not sure how that works really).  I suppose that me becoming an adult at 3 years of age has kinda warped some of my ideas about what it is to be an adult, and what is and is not important.

Next post – being angry.

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Imposter syndrome

Imposter Syndrome:

The impostor syndrome, sometimes called impostor phenomenon or fraud syndrome, is a psychological phenomenon in which people are unable to internalize their accomplishments. It is not an officially recognized psychological disorder, but has been the subject of numerous books and articles by psychologists and educators. The term was coined by clinical psychologists Pauline Clance and Suzanne Imes in 1978.

Despite external evidence of their competence, those with the syndrome remain convinced that they are frauds and do not deserve the success they have achieved. Proof of success is dismissed as luck, timing, or as a result of deceiving others into thinking they are more intelligent and competent than they believe themselves to be. (Wikipedia)

A long time ago, when I was at primary school, I was selected to be part of an extension project run by the Northern Territory Government (I was living in Alice Springs at the time).  The program was developed for gifted students and was to help accelerate their education, or something.  I never really understood the program, especially as it only ran during primary school and didn’t continue into high school.  I certainly enjoyed it though, because we learnt problem solving, puzzle solving, team work, an early introduction to algebra (still one of my favourite maths subjects), and had options to undertake external school activities like languages (I learnt some French), screen printing, photography and others.

Continue reading Imposter syndrome

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Running out of everything

It’s not a new problem for me, the problem of running out of coping, running out of caring, running out of energy beyond what is strictly necessary, but it is a problem that I have successfully managed to avoid for some years now, and so it snuck up on me with warning signs I’d forgotten how to read, and now I’m at the bottom of the barrel.

I could have seen it coming if I remembered the signs, but it’s been a long time since I ran out of everything that the signs were quite unfamiliar to me, until I hit that brick wall and stumbled backwards, landing on my arse and looking quite surprised with the world.

So the past few weeks have been really hard emotional work for me.  I’m an introvert (in the MBTI sense – I recharge by being near alone/alone), and so when I fill my calendar up with social engagements, and not sufficient time to spend recharging, I’m far more likely to hit that wall and sit up, blinking at it.  It takes a lot longer to recover once I’ve hit that wall than if I’d taken the time to myself to recharge before moving onto the next big (or small) thing.

It hasn’t helped of course that in the past 2 months my husband and one of his partner’s have ended ended their relationship (no hope at all of rekindling that, and she left him so he’s been really upset about that), a friend died and we’ve provided support to his partner and other friends who have needed it (and my husband went straight there when he found out and helped with the police report and other emotional supporting needs), spent a weekend in country Victoria with some lovely women, some of whom were working through issues – to which I gave hugs, a shoulder to cry on, and listening (as well as cooking and cleaning).  The following weekend (this wasn’t a wise move), I visited my parents and… well did parenting work.  This was the week after the funeral.  I then returned to Melbourne, had dinner with a friend, saw Bangarra perform Belong (highly highly recommend that if you ever have the opportunity to see them perform – will write more later), went to a gig (saw Mareike Hardy and Gotye occupy the same room), celebrated International Celebrate Bisexuality Day with a meal at the pub with my bisexual community, and then went out on Saturday night to dinner and then a burlesque themed show with friends… that’s when I knew.

That’s when I knew that I had nothing left, almost nothing left for me, and certainly nothing left for the group I was with.  I was numb, distant and somewhat irritated (though that last bit had probably far more to do with the venue than anything else).  I left early, went home and sat around a bit before I went to bed.  I decided to spend Sunday doing things for me (playing computer games, looking at my garden, etc), and not going out to the birthday yum cha that we’d been invited to.  My husband started off on his way there, found out that the one person he was going to see wasn’t going to be there, and then came home and fell into a deep depression.

I had very little left, and so tried to do what I could, unsuccessfully, and then found a great, albeit temporary, solution – Doctor Who.  We’d not seen any of the second half of this season yet, and now we’ve caught up.

Being close to running out of everything, and the running out of everything, has seriously messed up my blogging.  I have all these ideas that I want to write about, but haven’t had the concentration, time, or energy to do so.  But soon, because for the next several days I’m the most important person to me and I’m going to do what I need to do, so I can continue to, when I have my energy back, do what I do for others.

 

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A surprising experience

Before reading this post you may want to consider that it details some personal medical information about myself and my recent hospital experience.  If you are someone who doesn’t deal well with TMI, you might want to stop reading here and go and play somewhere else – you can come back when the next post is written.

On Tuesday I noticed a painful discomfort in my vagina.  I had previously had what I thought were called Barton Cysts – which had all been painful, but I knew that they could get infected and possibly need surgery to be repaired.  So I looked it up, it was indeed a Bartholin’s Cyst and I would probably need to have it looked at.  I poked at it, and it was tender and large, and so I went to bed thinking about what I was going to do about the whole thing.  On Wednesday night it was sufficiently painful and uncomfortable to stop me going to the gym, and I decided to take Thursday off to go and see my GP and see what could be done.  This was also on the recommendation of my sister who has previously had infected Bartholin’s cysts and had had surgery to resolve them.

Continue reading A surprising experience

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Not throwing caution to the wind

I have this thing about pain, it’s not me.  Which is odd given I have a very very high pain threshold (which almost saw me not go to hospital with an ectopic pregnancy – so my high pain threshold =/= smart).  I tolerate pain well, but I’m still really cautious.  Doing something that might result in injury (running, jumping, paying sports) are things I tend to avoid.  I’m really scared of falling and breaking something of the sudden pain and the resulting scene that would occur.

Though when I do trip and fall (and I’m still yet to break something) the world doesn’t end, and if I burst into tears with the pain, the world doesn’t end, and on those rare events such things happen someone stops to help me or I am with people who stop and help me.

All the same, I still am really cautious and tend to avoid activities that carry the risk of severe pain (except cooking which I partake in quite a lot).  I’m not sure why I’m quite so timid about such things.  I think some of it has to do with ballet and the excessive care that I took not to injure myself so I could still dance (with the exception of skinning my knees when falling off my bike).

No, I don’t think that’s it.  I climbed trees, climbed hills and cliffs and did child-ly things as a child.  I wasn’t hugely daring, but probably more daring than I am now.  So why have I slowed down more than others I know, though technically less than others… clearly it’s a growing up thing.  I’m far more aware of my mortality than I used to be.  I’ve almost died at least once now, so it’s not like I believe I never will.

I’m not upset or worried about my caution, it’s just something I’ve noticed recently and have been thinking about it.

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It’s time to grow up

There are some people I know, who I think are fantastic in many ways, who have a trait that tends to bug me a lot.  It’s this, an ability to tolerate/indulge certain (mostly negative) behaviours from individuals because they need to be that right now, or that they need to feel that it is ok to be that right now.  The thing that gets to me most, is not that my friends tolerate/indulge these behaviours from these individuals, it’s generally that I am expected to tolerate/indulge this behaviour as well.

If I complain about one of these people and say, “Ow, my eyes have been sporked“, then far too often I feel that the other individual (often masculine oddly enough) will be defended, and I am expected to attempt to compromise around their behaviour and it’s negative impacts on me.  I feel that I am expected to be the grown-up while the other person is often indulged in whatever tantrum, bad behaviour, etc, that they are undertaking that I am objecting to.  “Oh but you don’t know where they are right now” and “But they’re not really like that” aren’t good enough.  Compromise is not a one way street.

If someone is being an arsehat, then I’m going to call that out.  I understand that the support I’m going to get from some of my friends is going to be seriously lacking, but that’s going to be ok.  Because right now, I clearly need to be angry and intolerant of all arsehatted behaviour.  I will be spending a lot more time being intolerant of arsehats and the negative impact that has on me.  Because it’s time we all grew up.

 

 

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Things I wish I’d learnt as a child

  • How to be rude to those that deserve it
  • How to be angry
  • How to complain effectively
  • How to negotiate
  • How to bargain/barter
  • How not to be racist, sexist, homophobic, transphobic, biphobic, ablest (I learnt these far later)
  • That sex wasn’t something to be ashamed of
  • That I should love my body and that I can be healthy at every size
  • How to think critically
  • How to manage personal politics
  • How to budget effectively
  • How to spot abusive behaviour in relationships and how to get out of them
  • How to say no
  • How to be loud
  • How to stand up for myself

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