Marriage Equality – again

So last night the Liberal Party and the National Party held a meeting for over 5 hours to discuss whether or not the party would allow a free conscience vote (which still would have not gotten the required numbers over the line) or whether they’d all vote as a block and therefore and vote No.  The block voting won (in case you didn’t know).

Not enough has been said about this debate taking over 5 hours in my opinion.  Over 5 hours.

I hate meetings at the best of times, finding them an incredible waste of time when I could be doing the stuff that is discussed, but this meeting went FOR OVER 5 HOURS.  That’s 5 hours of impassioned debate about an issue that is important (not the most important, but still).  An issue that is capturing the world’s attention.  An issue that reduces the active amount of discrimination in the world.  A few years ago, we would have been lucky if that party room discussion went for an hour.

Just this year Ireland, the United States of America and Mexico have allowed same-sex marriage, adding to a long list of countries in which it is already legal.  The referendum in Ireland with the majority of voters voting yes, and the Supreme Court decision in the USA have been big drivers to get marriage equality back into Parliamentary debate here in Australia, and it’s not going anywhere soon

I’m grateful that some LNP politicians have my back on at least one issue that can affect me.  I’m not generally the type to support the LNP (queer, left leaning woman who is big on social justice), but it’s good to see that some of the party has actively thought about what is good for Australia and Australians and decided that if over 70% of Australians support marriage equality, then perhaps that’s something that should be recognised.

Now I’m going to take a small detour here and talk about some bigoted arsehats who have weighed in on this debate in one for or another recently.  This is where the post is going to be long, but will hopefully still make sense.  Ok, I’m ranting, leave me my ranting space.

New South Wales Senator Concetta Fierravanti-Wells (Liberal)

Fierravanti-Wells told the party room yesterday that:

…she believed opinion polls showing majority support for legalising same-sex marriage did not reflect the views of a “silent majority” of Australian voters.

She said changing the marriage laws – or being seen to condone change – would cost the Coalition seats at the next election.

The senator referred to an analysis she had undertaken which identified marginal seats with high percentages of religious voters.

A copy of the analysis, dated July 3, lists 14 seats across New South Wales, Queensland, Victoria and Tasmania with relatively high proportions of Catholic, Orthodox, Anglican, Muslim or Buddhist voters or overseas-born voters from ethnic communities likely to oppose same-sex marriage.

In a written foreword to her analysis, Senator Fierravanti-Wells, the parliamentary secretary for social services, also responsible for multicultural affairs, says she believes there is strong opposition among culturally and religiously diverse communities to changing the marriage laws.

Ok, let’s just start with a majority says X, so a “silent majority” says Y.  I’m not convinced that Fierravanti-Wells does maths.  Also, I’m not convinced that Fierravanti-Wells has actually spoken to anyone of these people she’s using to support her argument against marriage equality.  She claims that:

She notes that faith leaders from across Australia had written to the Government in June, objecting to any change.

Her analysis includes the western Sydney seat of Barton, the Liberals’ most marginal seat, held by Liberal Nickolas Varvaris on 50.31 per cent.

She says Barton has nearly eight times the proportion of eastern Orthodox constituents than the national average, four times the proportion of Muslims, a higher-than-average Greek population and fewer who said they had “no religion”.

Other western Sydney marginal seats included are Reid, Werriwa, Banks and Parramatta.

The analysis says Parramatta, held by Labor’s Julie Owens on 50.57 per cent, is 25 per cent Catholic, has 10 times the national average of voters identifying as Hindu, four times the rate identifying as Islamic and higher-than-average percentages of those born in India and Lebanon.

The first issue here is that Faith Leaders don’t represent the believes and feelings of their flocks.  I know they claim they do, but you get the Catholic and some Anglican faith leaders in Australia being bigoted arsehats, and most Catholics and Anglicans actually supporting marriage equality.  Not knowing a large number of Buddhists, Hindus, Muslims or Orthodox people, I cannot claim to know what they do and do not support, however I do note that the majority of Australians support marriage equality, and that is something that really should be taken into account.

I know I’ve said that majority of Australians more than once tonight, so let’s get that data for you.  From a report in The Age in July 2015:

Support among Australians for same-sex marriage and for a conscience vote in the Coalition has reached an all-time high, according to a survey by the Liberal Party’s own pollster.

A Crosby Textor poll, commissioned by Australian Marriage Equality, has found that 72 per cent of Australians want same-sex marriage legalised, while 77 per cent think Coalition MPs should be granted a conscience vote.

The survey by the Liberal Party’s national pollster finds support for marriage equality is increasing among Australians, up from 65 per cent in a Nielsen poll last August.

It shows opposition to same-sex marriage has collapsed, with just one in five Australians or 21 per cent opposed, marking Parliament as increasingly out of step with the views of the majority of Australians.

According to the poll, support for same-sex marriage is now higher in Australia than it was in any other country, including New Zealand and Great Britain, when overseas parliaments have passed marriage equality laws.

And if you want something a little more recent than July this year, from Australian Marriage Equality (August 2015):

Marriage equality advocates have welcomed a new poll showing almost 60% of Australians believe marriage equality is a medium to high priority.

The poll, conducted for anti-marriage equality group, the Marriage Alliance, found that marriage equality is, on average, the 13th most important issue for Australians, about the same level of priority given to agriculture, taxation and asylum seekers.

59% of poll respondents said marriage equality is a priority, made up of 24% who said marriage equality it is a high priority and 35% said it is a medium priority. Only 39% said it is low a priority.

So even when organisations against marriage equality are attempting to poll against marriage equality, they can’t do it.

Charitably I could believe that Fierravanti-Wells really did care about the numbers and how the LNP will poll in the next election, but didn’t actually consider what she was saying – which effectively is that all religious and culturally diverse people are happy to discriminate against same-sex attracted people when it comes to marriage (or in short-hand that they are bigots).  I’m positive that this is not the case.

https://twitter.com/AGFchairman/status/631424034714955776

Kevin Donnelly

I’ve blogged about Donnelly before, he has a track record of being racist, and now he’s adding homophobic to the list.  I haven’t even read the article, I didn’t need to after seeing this headline, “Abbott made the right call on same-sex marriage“.

Donnelly tries to be clever and epically fails:

This is especially the case as many of the arguments in favour of same-sex marriage are flawed. Those wanting change argue that defining marriage as involving a man and a woman discriminates against lesbians and homosexuals.

Ignored is that there are many examples where society and the law allow discrimination to occur. Women-only gyms and clubs are allowed to exclude men and those under 18 are not allowed to view X-rated films and videos.

Yes, defining marriage as only involving a man and a woman discriminates against gay men, lesbian women, bisexual people and trans people.  It’s ok Donnelly, I’m glad you forgot some of us.  The less you think about us the better off we’ll all be.

Ignored is the fact that Donnelly doesn’t understand that not all discrimination is harmful, and that children are to be protected against things that harm them.  Let’s work on the first one.  Women only gyms.  Women are far more likely to be sexually assaulted by men than the other way around.  Therefore in the interest of safety, women only gyms exist, where men are discriminated against to protect women.  When men stop assaulting women at the current rates, then it is possible the need for women only gyms will go away.

Marriage equality harms no one, and the discrimination against same-sex coupled people who’d like to marry harms them.

Children and pornography.  I don’t even with this one Donnelly.  We have lots of laws to protect children, we have laws about who they can have sex with, we have laws about them having to go to school, we have laws about the mandatory reporting of abuse, we have laws that can result in them being removed from their homes.  It is believed that pornography will harm children, therefore children cannot see pornography.  I note that Donnelly isn’t complaining about any other laws relating to children, so I wonder why that is.

Many on the cultural left, often the strongest supporters of same-sex marriage, also argue in favour of positive discrimination where they believe some people should be treated differently to others.

Because Donnelly doesn’t understand the difference between equality and justice/equity, I give you the following image:

First image – three people are standing on boxes looking over a fence to watch a baseball game. The tallest and second tallest can see over the fence. The shortest cannot. Second image – Three people are watching a baseball game over a fence. The tallest can see over the fence. The second tallest is standing on one box to see over the fence. The shortest is standing on two boxes to see over the fence.

This is why we suggest that some people should be treated more positively – because they are coming from further behind that others.  Many people are coming from further behind than Kevin Donnelly, as we’re not all straight, white men with a platform to be vilely racist and homophobic.

Also ignored, for all intents and purposes, is that gays and lesbians already have the same rights as de-facto heterosexual couples.

Also ignored by Donnelly is that not all same-sex attracted people want to marry, but denying those who do is harmful.  Sure we can live in defacto relationships, and we do right now, but that isn’t the same as marriage.  If it was, then we wouldn’t be having this debate.

A second strategy employed by same-sex marriage advocates is to argue that anyone who disagrees is bigoted and homophobic. Wrong. The reality is that many of those opposed to redefining marriage do so for sound and carefully thought through reasons.

I love this comment, it is a comment I see all the time.  “I’m not bigoted and homophobic, I’ve thought about some really good reasons why I oppose granting rights to same-sex attracted people that would do me no harm whatsoever.”  I am also yet to meet a good argument against same-sex marriage that doesn’t in the end reduce down to either “my religion is homophobic, not me”, or “because gay sex is icky” which are both homophobic.

As Andrew P Street wrote, “And if you are, in fact, a bigot, then it shouldn’t bother you that people are accurately assessing your shortcomings as a human being on the basis of the things you believe, based on the stuff you say.”  Donnelly continues:

When arguing that the definition of marriage must be changed to include same-sex couples, advocates often argue that the love between a man and a man and a woman and a woman is the same as that experienced by heterosexuals.

From a biological point of view, such is clearly not the case. Such is the physiology involved in procreation, and not withstanding the availability of surrogacy and in vitro fertilisation, that it requires a man and a woman. The optimum environment in which to raise a child also involves a mother and a father.

Oh yeah, I forgot the third way, the reproductive argument.  If two people of the same gender can’t have children, their relationship is worth less than those that can, because apparently all we’re about is having children.  Let’s not look at the treatment of those children by heterosexual people. Let’s especially not look at the really positive outcomes for children raised by same-sex parents.  Let’s leave Donnelly to his little bigoted world where LGBTI people are worse people than heterosexual people.  He’s wrong of course, we’re pretty fucking awesome.

Michael Jensen

This piece is from May and I’ve been putting off on blogging about it because it’s so full of complete and utter rubbish that it isn’t really worth mentioning – except that it’s another white, Christian man telling us that he isn’t really a bigot for not supporting marriage equality, “I oppose same-sex marriage (and no, I’m not a bigot)“:

How could anyone stand opposed? The terms in which the pro-marriage redefinition case are stated make it sound as inevitable as the dawn, and as unstoppable as the tide. And these same terms make opposing a redefinition of marriage sound primitive and even barbaric. There are those in favour of change, we are told, and then there are the bigots.

I do wonder how anyone can stand opposed without actually being a bigot.

It is not even the case that “all the surveys say Australians want it” is a sufficient argument. The surveys say that Australians want capital punishment. Wisely, our politicians don’t listen to surveys on that issue (and I agree with them). They should exercise leadership, not follow opinion.

I’ve seen this argument before and it’s an interesting one.  It’s particularly fascinating that the death penalty is brought into an argument, to contrast something where no one gets hurt.  On one side you have the violent end of someone’s life, on the other side you have two consenting adults committing to their relationship in front of family and friends, and having the Government, and other bodies that need to, recognising that relationship legally.  It’s not like they are even remotely in the same class of things.

Should the Australian Government listen to the people in all things?  Should the Australian Government take the lead on some things so that the better interest is served?  Wouldn’t it be best if the Australian Government was abolitionist on the death penalty and in support of marriage equality?  The Australian Government should be about the best human rights that we can grant to each other.  That includes being abolitionist on the death penalty and in support of marriage equality.  There we go, I solved that one for you.

In fact, it may be the case that offering supposedly “equal” treatment is incoherent, as it is in this case. It is crucial to notice that the proposed revision of marriage laws involves exactly that: a revision of marriage. In order to offer the status of marriage to couples of the same sex, the very meaning of marriage has to be changed. In which case, what same-sex couples will have will not be the same as what differently sexed couples now have.

Except that marriage has changed multiple times over millennia and the world didn’t end.  Men used to marry their property, which then begat more property which they’d consent to have married off to other men, unless some of that property were male, in which case they’d become human whenever the age of adulthood was at that time.  Men now marry women, and both people have to consent to the marriage.  Men used to also marry lots of property, they’d have multiple property all over the place, sometimes it mattered if the property consented to more property being married, sometimes it didn’t.  It used to be that you couldn’t marry without your parents’ consent, and most marriages were arranged.

If marriage can change to be what it is now, then it can change to include same-sex couples who want to marry.

This is where Bill Shorten again misunderstands what marriage is. As we now understand it, marriage is not merely the expression of a love people have for each other. It is, or is intended as, a life-long union between two people who exemplify the biological duality of the human race, with the openness to welcoming children into the world. Even when children do not arrive, the differentiated twoness of marriage indicates its inherent structure.

Blah, blah, blah – see argument about children above. Also, to erase other gendered people from the conversation is an arse move Mr Jensen.

Look I really don’t understand why so many people are frightened of marriage equality.  If it creates something new, something that currently discriminated people can engage in, what is the problem with that?  Do so many of these bigots believe that the moment marriage equality is granted those who would have otherwise married someone of the opposite sex will suddenly rush out and go and marry someone of the same sex?  Do they think that being queer is contagious and it’s only the shame of being queer, and the inability to marry that keeps opposite sex marriage going?  Do they think that suddenly everyone will stop having children, or start ignoring children, and suddenly there won’t be a human race any more?

There are FAR more important issues facing the earth today than marriage equality.  Granting marriage equality makes the lives of many of my queer siblings better.  It does not save the environment, it does not refreeze the glaciers, it does not bring endangered creatures back from the brink of extinction.  It certainly doesn’t help asylum seekers or bring peace to nations at war.  It does make a difference though, and that difference is one that has been made in many other places already and it helps.

Granting marriage equality helps, and granting it means that people like me can marry if they want.  Families can recognise the relationships of their children and parents.  Relationships that until relatively recently were looked at as deviant and different can instead be shown to be as valued as the opposite sex relationships they are surrounded by.  It means that children who are growing up queer know that if they wish to get married and be like their friends in opposite sex relationships, they can.  Think of the children, think of those who you’re denying the ability to be normal.

 

 

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Cancer Update #5 – Results of surgery

So today I saw the breast surgeon and got the results from surgery.  In fact one of the results was delayed and we spent time sitting around the hospital waiting until it was ready – bumping into an old friend who had breast cancer some time ago, and who was there for a checkup.

The good news is that they have removed all the tumour and that there was no cancer in the removed lymph node.  They confirmed the grade of my cancer at 2, and once removed it was 13mm – so 5mm bigger than the ultrasound put it – which apparently is common.  There was some cancer in the surrounding tissue, but not at the edges of the margin they removed so they believe they got it all.

There was no HER2 associated with the tumour so chemo is not mandatory.  However, as I am young (as far as breast cancer goes) and because the growth factor of the tumour is 25% (which is higher than the 5 – 10% they prefer), the surgeon suggested that I might want to considering sending a sliver of my tumour off to the US for further testing to see if chemo would be beneficial.  However this comes at a hefty price tag of $4000 (not covered by Medicare or private health cover).  The surgeon wanted to state that it is something I should consider, but he said that he believed that the radiotherapy and Tamoxifen would more than likely be sufficient given the make-up of the tumour.  I have an appointment with an oncologist on Monday to get more information as to what they think regarding the test and chemotherapy.

The surgeon was extra impressed with my healing prowess.  He said that it looked like I had surgery a month ago, not a week and a half, when he removed the dressings.  I heal well, I probably should have been involved in more risky, extreme sports as a young adult and tested my healing to the limit.  Except I’m not a fan of being adrenaline and pain.

I’m really relieved that I don’t need more surgery, and that I probably don’t need chemo.  I was more stressed about more surgery as that was an immediate, unpleasant experience – one I didn’t want to repeat any time soon.  I’m not sure about chemo yet, I’m going to gather more information, including from people who’ve survived breast cancer, and determine whether or not paying for the testing is a worthwhile investment, or whether I should stick with the most likely to be successful existing treatment of radiotherapy and Tamoxifen (plus other drugs as needed).

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Post-Apocalyptic Review: Coda by Emma Trevayne

Book: Coda by Emma Trevayne

Format consumed: ebook, also available in hardcopy (Fishpond, Booktopia, etc)

Plot summary (from Goodreads):

Ever since he was a young boy, music has coursed through the veins of eighteen-year-old Anthem—the Corp has certainly seen to that. By encoding music with addictive and mind-altering elements, the Corp holds control over all citizens, particularly conduits like Anthem, whose life energy feeds the main power in the Grid.

Anthem finds hope and comfort in the twin siblings he cares for, even as he watches the life drain slowly and painfully from his father. Escape is found in his underground rock band, where music sounds free, clear, and unencoded deep in an abandoned basement. But when a band member dies suspiciously from a tracking overdose, Anthem knows that his time has suddenly become limited. Revolution all but sings in the air, and Anthem cannot help but answer the call with the chords of choice and free will. But will the girl he loves help or hinder him?

Type of post-apocalyptic story: The world ended many years ago, possibly over 100 years ago. It’s very vague as to how that happened, it could have been disease, global climate change, or war, but there were a lot of injured people and music was found to soothe and heal them them – so music became a tool to control the population and maintain behaviour.  There is no mention of other countries or population centres outside where Anthem lives in the story.

Review

I picked up this book as it was nominated for a Bisexual fiction award.  Anthem is bisexual.  In this book he is interested in one of the female characters, but he is still friends with his ex-boyfriend, and they spend a fair amount of time clubbing together in the book.  For a story about a bisexual man, I recommend this.  It was good on many other elements. too.  I read this a while ago, so my memory is a little rusty.

World Building: Apart from no mention of other population centres, the world is believable.  There are ruins of the world before surrounding the world as it is today in the story.  There is a police state that is working on getting things done, maintaining their own power, and control.  There is a class system of the haves and have nots based on current wealth, and it is almost possible to move between them, but not likely for most people.

The technology is incredible, the ability to encode music with subliminal messages/beats that makes it addictive, as well as controlling mood and improving people’s ability to heal.  The ability for people to be bio-generators of power to power the city, the ability for people to record their lives so that after they die others can still see them, like the way we record things on our phones.

Character Building: So the main character is male and bisexual, a combination which is really rare in a book.  Also, everyone else is pretty much ok with bisexuality (nice), and queerness in general (also nice).  The characters have different motivations for doing things, they have their own back stories and women are treated as equally capable as men.  When Anthem believes that the woman he is interested in has betrayed him, he doesn’t believe that it is because she’s a woman, or that she’s weak.

Women: So Anthem’s love interest in this story is a woman and she’s a fully rounded character, with multiple depths to her.  There is also Anthem’s … handler (I’m really not quite sure what the correct word is) at the bio-generation plant who ensures that he is plugged in correctly and has something to read/occupy his time while he’s there.  There are several baddies who are also women.  None of these characters are single dimensional, and none of them are sex objects.

Non-white characters: There are a range of non-white characters in the book.  Anthem is blond-haired and blue-eyed.  Haven, his love interest, has olive skin.  Another one of the characters is described as being so dark, that in the darkened, disused space that they’re performing music in, he’s difficult to see.

Disabled Characters: Although there are no visible disabilities mentioned, there is the theme of addiction and the ruination that can cause throughout the book.  Anthem lost his mother to her addiction to the Corp’s music, and is in the process of losing his father.  There is an acknowledgement of mental health issues, and the characters are familiar with depression and anxiety.

Queer Characters: Anthem is bisexual, his ex, Scope, is gay, there are other queer characters in the book.  There are straight characters.  Orientation isn’t an issue in this version of the future.  It’s nice to see a future where who you are attracted to is not an issue and nothing to be ashamed of.

There were no trans characters that I am aware of in the book.

Final thoughts

There is a reason this book was nominated for an award. It does a lot of things right, and I really enjoyed it.

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Post-Apocalyptic Book Review: Damnation Alley – Roger Zelazny

Book: Damnation Alley by Roger Zelazny

Form consumed: ebook, also in hardcopy about the place (Booktopia, Fishpond, etc)

Plot (from Wikipedia)

The story opens in a post-apocalyptic Southern California, in a hellish world shattered by nuclear war decades before. Several police states have emerged in place of the former United States. Hurricane-force winds above five hundred feet prevent any sort of air travel from one state to the next, and sudden, violent, and unpredictable storms make day-to-day life a mini-hell. Hell Tanner, an imprisoned killer, is offered a full pardon in exchange for taking on a suicide mission—a drive through “Damnation Alley” across a ruined America from Los Angeles to Boston—as one of three vehicles attempting to deliver an urgently needed plague vaccine.

Type of post-apocalyptic story: The current world has ended, the story starts around 30 – 40 years after the event.  Society for the most part has stabilised and is now focussed on survival.

Review:

I really enjoyed this book, for the most part, however there were a few gaping issues.  Let’s do all the good things.  There will be spoilers

World building: I really liked the way Zelazny put the world together for this book.  The main character was not alive when the current world was destroyed and the new world was formed.  He doesn’t know most of what happened, and doesn’t care – so neither does the reader for the most part.  During the story the main character, Tanner, finds out a bit more, and still doesn’t care, as living in the world as it is, is his current struggle.

The fantastical way that the world has been reshaped due to radiation, storms, and people, the way people survive day to day, and how government continues (or doesn’t) to operate is all very interesting and I can see why a lot of people were inspired by the story to create works in homage.

Character building: There is only one real character, the rest are there to drive the plot but are in essence completely unimportant.  Despite Tanner supposedly being a complete and utter arsehole (and he is a bit), he’s really just a guy who wants to be left alone, and safe – though his version of left alone and safe tends to be one where a lot of other people end up dead.  Granted many of those other people have attempted to kill him at some point.  He’s not completely unlikeable as a character and you do find yourself rooting for him.  I’d say he is lazily written because he’s not really one thing or another, and I think he should be given how he is introduced.

Description: I’m a big believer in using words to their fullest effect so I can build a mental picture of what the author is describing.  I found that this book was very successful in that, but not so successful that I wanted to stop reading after describing some mutated horror, or yet more violence.

And now the badly done bits

Women: So there are three main female characters in the book; two are sex objects and one is a mother.  The book would have worked completely fine without them, and I actually would have preferred that to be the case.  I haven’t read much Zelazny so I don’t know if he cannot write women, or whether he is actually sexist, but the three characters were really pointless to the story, and appear to be a lazy attempt at inclusion.

The mother was there in a farming household, and she was intimidated by Tanner – which isn’t surprising, he’s a force of chaotic nature and I’d be scared of him.  She didn’t drive the plot, and did nothing than be a mother to some children Tanner was interacting with, and the husband of a farmer.  She wasn’t badly written, just an illustration along the story.

The two sex objects were awful.  Zelazny clearly cannot write a sex scene.  The first woman, Cornelia, is a member of a gang that attacks Tanner.  Tanner is effectively driving a tank, and he takes out pretty much everyone in the gang, and avoids killing Cornelia by chance (he doesn’t know she’s there initially).  He picks up her, patches her wounds and she joins him.  She clearly doesn’t care that Tanner has killed her entire gang (and probably family), and happily comes along with him.  They hook up, have sex, she gets killed by another gang, Tanner buries her and continues on his way.

The second woman, Evelyn, only exists to drive the plot forward.  She lives in the plague infested Boston and is meeting with her beau who believes that he is infected with the plague but wants to see her one last time.  Then ensues one of the most awkwardly written sex scenes I’ve read for a while:

They moved to the bed and did not speak again until after he had ridden her for several minutes and she heard him sigh and felt the warm moisture come into her. Then she rubbed his shoulders and said, “That was good.”

Evelyn, her beau and most of Boston aren’t likeable.  You don’t care that they’re dying of the plague, and the world would probably be a better place if they did because then a whole lot of annoying people wouldn’t exist.  Badly written characters like this really don’t help the story.  If Tanner wasn’t such a strong character, and his determination to just keep moving forward, you really wouldn’t care about what happens to Boston.  Because Tanner cares (though even that seems to be out of character), you care.

Non-white characters: I don’t recall any being described in the book.  Evelyn is described as having red hair, Cornelia is described as having brown hair, and an obvious red burn to her face (from Tanner’s self defence flame-thrower).  The mother is described as having red cheeks.  Tanner really doesn’t have that much of a description other than having dark eyes, a beard, and being a biker.

Disabled characters: Despite the world pretty much self destructing there are no mentions of disabled characters. Given the current state of the world, there would be some, and you’d expect there to be a mention of them.

Queer characters: None are mentioned.  It wouldn’t have been too hard to include one in the story, Evelyn’s beau could have been a woman, or bisexual, or even trans, any of the other characters that Tanner briefly meets could have been queer.

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Cancer update #4 (one week since op)

I’m still here, recovering as well as can be expected really.  It hurts a fair bit, and when it’s not hurting it itches. I know that itching is a sign of healing, but it’s really irritating nonetheless.

The incision under my arm is about 8 times larger than usual, and it’s cut through muscle, so that’s the one that is causing me the most grief.  The lymph node was clearly busy hiding and not wanting to be removed.  I have most of the movement back in that arm now, I even was able to lie on my left side last night, so it’s healing slowly but surely.

I have almost one more week off work to complete the majority of healing, and an appointment with the hospital on Monday to go through the next treatment steps.  It’s unlikely that I’ll need more surgery (15% chance) or chemo (20% chance) so it’s more likely they’ll check how I’m healing up and propose a date to see someone about starting radiotherapy based on how fast I’m healing.

I’m somewhat anxious about Monday because I don’t know what is going to happen.  This is understandable and unsurprising.  I will be taking my partners along with me, who the hospital has been very good with, so I have all the support I need, and so they understand what happens next.

Mostly I’ve been spending time on the computer reading twitter, blogs, playing games, and spending time catching up on TV.  Lovely people have visited me and brought me gifts of tasty food, hugs and their company.  I have received flowers from friends, and calls from people checking in on me that I’m ok. I am very grateful for all the support and love, and it has really helped.

I’m looking forward to joining the Boob Club so I have a support network of people who’ve been where I am now (or who may be where I am now).  There is always the risk when you join a group of people with a specific interest that that may be the only thing that you have in common.  I’m sure I will find other women who are into social justice, queer rights, and cooking (not necessarily all at the same time).  That’s not too much to ask.

I’ve been thinking about Chally’s recent post “What not to say to someone in hospital, part one“, after a call I received from one of my work vendors (as in she’s the account manager for a company and I manage the contract between her company and my client).  She was asking me questions about how I was going, as she’d just found out about my diagnosis and surgery, and I was thinking that some of those questions were incredibly impolite.  I like her, she’s lovely, but asking me if the surgery involved the removal of my breast isn’t really something I’d ask someone I had a professional relationship with.  People are strange.  It’s that blurred line between working with someone for years (in this case about 5) and knowing each other well, and what the actual relationship is.  It didn’t upset me, I just thought it was inappropriate and something I need to consider for the future.

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I’m not afraid of dying

I’m not dying.

I was chatting with James last night, in between sleeping bouts, about things and he mentioned that he was afraid of death, the cessation of being, and I replied that I’m only afraid of dying from the viewpoint that I might leave those I care about (and for) without means to look after themselves, and as I currently have a healthy life insurance policy AND a decent amount of superannuation, this isn’t an issue.

I mean I don’t want to die, I’m quite enjoying being alive, and I’m not looking forward to dying any time soon, but I’m not afraid of dying.  I’ve been faced with my mortality twice now in the last 10 years of my life.  The first time was when I had an ecoptic pregnancy, I was in a lot of pain, I lost a lot of blood, and the whole thing was rather unpleasant (as an understatement).  Most recently it was being told I have cancer.  Sure the cancer was caught at a very early stage, but it’s still a condition that can potentially kill you.

My cancer diagnosis has been stressful, and as there are multiple paths my treatment can take I yet don’t know the exact shape of the rest of my journey, but I do know I’m going to be on the other side of the most invasive part of the treatment in the next 6 months.  I suppose a large part of not being stressed about dying from this is because I am 99.9% certain it’s not going to kill me, it’s just not going to be fun.

But even if I did die, I have done my best to make the world a better place.  I have worked hard to ensure that those I love and care for will be financially stable and secure after I have died.  I have loved and been loved, eaten good food, and travelled to fantastic places.  I haven’t done everything I want, but I have achieved a lot.

Death holds no fear for me right now.  It’s a weird, but good place to be.  I know this comes with a degree of privilege, particularly financial privilege, and I have worked hard to make this the case.  Ten years ago, I would not have been in this position, it is a very recent thing that has made this the case.

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Cancer Update #3 (post op)

So I’m sitting at home now, mostly able to type, much clearer headed, and healing.  There is a wide range of movement I can’t do, and I’m still figuring out bits of that.

I’ve been sleeping in our recliner couch for the past 2 nights as I have been worried that sleeping in my own bed would be too uncomfortable, mostly due to an inability to roll from side to side, and getting up being a real pain the side.  I might graduate to sleeping in my bed tonight, I don’t know yet.  My neck would certainly appreciate me sleeping in my own bed, but we’ll see.

I have two rather large incisions on me.  One under my arm where the sentinel lymph node was taken, and one where the tumour was removed. If I cared about such things, I’m fortunate that both of the scars (when they eventually heal) will be in non-visible locations.  I’m actually a little disappointed about that, I think that scars are cool.

The incision under my arm is the one that hurts the most.  This isn’t surprising as that is the location that sees a lot more movement (twisting, lifting, rubbing, etc).

Yesterday was a day of minimal food as I was still feeling nauseous thanks to the operation, pain and the drugs I was taking.  Today I feel way more human and I aim to try the delicious looking cake my sister has made for me. I also want to go for a walk around the block to get my body a bit more mobile and drop the neck pain I have.

I could go through the ins and outs of Wednesday (surgery), but I won’t (unless you want me to) other than to say it was a really long day, the staff at the Royal Women’s Hospital are fantastic, and that it was slightly worse than I expected it to be.

I won’t get the results of the biopsies of the tumour and sentinel lymph node until Monday week, so in the interim I heal, continue to be spoilt by my loved ones, and gradually each day become more and more independent.

Today I could undress myself, tomorrow I might even be able to shower on my own.  The wonders of a body which can heal itself from invasive surgery.

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Cancer Update #2

So today I went and got my other test results (blood test, biopsy of another anomaly) and spoke to the surgeon and breast cancer nurse about surgery on Wednesday.  I probably won’t be blogging immediately after the surgery, not the least because they’ll be operating under my left arm (in the arm pit) and that means that typing and the like isn’t on the agenda for a few days.

I’ll state this up front – this whole thing seems so unreal.  I am not obviously sick, I do not feel sick.  Apart from some pain where the tumour apparently is against the chest wall, I don’t feel like I have cancer – whatever that feels like.  Wednesday is going to make the whole thing a lot more real, and that’s both scary and reassuring.  Scary because cancer is scary.  Reassuring because I do feel a little like an imposter right now, because I feel mostly fine (just stressed).

Anyway – today’s visit to the hospital had my blood test results completely normal (with slight vitamin D deficiency which is unsurprising as it is winter), and the biopsy coming back completely clear.  We went through all the process for the pre-op stuff, told how much it’s going to hurt (a fair amount), and how much I’m going to have to wait (a lot), and reassured about some of the side effects, like the blue dye that is used to trace the lymph node paths will stain my skin – that’s normal.

Also we went through some worst case scenarios, just so I was across them.  The nurse was impressed that I was so calm and in control – that is my default state, I will probably fall apart later – and that’s ok too.

So a week off work (this week) and possibly some time of work next week to ensure I’m healing well.  A further biopsy of the tumour after it has been removed builds the next step scenarios.  Best case, I have 4 – 6 weeks of radiotherapy a month after surgery, and then on a drug for 5 – 10 years.  Worst case, I have additional surgery and/or chemo before radiotherapy and medication for years.

Yes I’ll probably keep blogging about cancer, because writing stuff down helps me sort through it.  I do want to blog about other things to, and once I’ve gotten the big bits out of the way, I’ll probably go back to doing just that.

I do want to say how grateful I am to have been born in Australia and eligible, thanks to my citizenship, to access free healthcare.  All of this treatment will cost me very little.  The medication will be the most costly part.  The operation, radiotherapy, and consultation visits will be covered by my taxes and the paid taxes of other people.  This is a fantastic thing, and means that I don’t have to ask myself if treating possible cancer is something I need to do or is it something I can live with.  I do wish people in other countries without “socialised medical systems” could access the level of care that I will be accessing for the cost that I will be paying.

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Cancer update #1

So yes, I’ll be blogging about cancer from time to time, as a way to keep everyone updated, and to save me having the same conversation over and over.  Not that that is necessarily a bad thing, but I enjoy efficiency.

Today I had my appointment at the Royal Women’s Hospital to meet the breast surgeon, breast cancer nurse and find out more about the next steps.  I might have surgery as early as next week – which is much sooner than I anticipated.  The breast surgeon also wanted a biopsy of something that was noted in the first radiology report on my right breast just to be on the safe side, so I got one of those too.  It is most likely a regular, bog-standard lymph node, but the surgeon wants to be extra, extra sure because you shouldn’t mess around with cancer.

I was also told that the reason my tumour is so goddamn painful, is that it’s sitting on the chest wall – so that’s kinda helpful and still annoying.

I also need to get a blood test, but as I was insufficiently hydrated today, I’ll get that tomorrow after lunch.  Must go and get a glass of water.

This biopsy was far less painful.  I told the doctor performing it that I cried for an hour after the last one as it was so incredibly painful, so she made sure there was extra local anaesthetic and waited for it to take effect.  We also laughed a lot, which was nice, but weird when people are jabbing needles into you.  I don’t think they appreciated my joke that ultrasound gel is like semen in that it gets everywhere – and I probably should have self-censored that, but I have cancer, and some jokes get made.

So next steps are surgery (very soon), 6 – 8 weeks of healing (and hopefully no follow up surgery), 4 – 6 weeks of radiotherapy Monday through Friday, and then medication for 5 years.  This all assumes that my tumour tests negative to HER2, which I have an 80% of it doing so.

Just quietly, Breast Cancer information in Australia (at least) is incredibly cissexist.  Hugely cissexist, and it makes me uncomfortable.

How am I doing?  I’m pretty good right now.  Every now and again I feel overwhelmed with what’s happening and anxious – but that’s to be expected.  I like having plans, and knowing what’s going to happen next, even though some of that is a little nebulous and fluid because it depends on things we don’t yet know 100%.  I’m not particularly fussed about having scars on my breasts (something I used to think about as a kid anyway, because I liked the look of ritual scarification).  I am somewhat concerned about radiotherapy, because that sounds intense and annoying (but is also far enough away in the future for it not to be an immediate concern).  I am mostly ok with the idea of medication, I think I’ll be able to manage the common side-effects in a way that works for everyone concerned.

Also, outing yourself as non-monogamous at the hospital straight up is easy, particularly in Australia in the public health system in metropolitan hospitals (other areas may vary).  I brought both partners with me to the appointment, and made it very clear that they were my partners.  It was written in my file, along with my medical history, and everyone was cool with it. In fact one doctor said that I was lucky to have the extra support.

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So I’ve got cancer

I found a small lump in my breast, it was tender so I went and saw my doctor.  He sent me off for imaging, and then I saw a specialist who sent me off for a biopsy (that REALLY hurt).  Then I was told I had a very small (8mm) cancerous tumour in my breast.  I’m now an official member of the, “You’ve got cancer” club.  I’m not impressed.

I’ve found the cancer so early that I probably only need surgery, radiotherapy and Tamoxifen to treat.  This all depends on what the surgery and subsequent biopsies show really.  It’s a fun environment of, “Do A, then possibly do B or C depending on results of A”.  Being a big fan of plans, I plan to work out what is going to happen, how I will manage it, and what support I need.

This is a blog post (which may be updated as more info comes through, or new posts added, I’m not sure), which will outline what I want and don’t want over the next 6 months (as a starter).

Things I want

  • To keep working as much as possible
  • Snuggles
  • Chocolate
  • Plans
  • Shoulders to lean/cry on
  • Having meals cooked for me for those days I don’t cope
  • Understanding
  • Conversations with people who have survived cancer

Things I don’t want

  • Advice regarding natural therapies for cancer treatment
  • Being treated as if I’m going to fall apart any second
  • Being told to take time off work

Kvetching circles completely apply here.  This is my condition, my body, my issue.  Do not make it about you, do not make it about how you can feel better that the roll of the dice went badly at my end.  I have enough to deal with, without you making this about you. (This is not currently directed at anyone I’ve told, this is just case it needs saying).

I will continue to work, I will blog, I will study, I will cook, I will yoga, I will … because I enjoy these things, because they’re good for me, and because life goes on.

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