Category Archives: Me

Cancer Update #2

So today I went and got my other test results (blood test, biopsy of another anomaly) and spoke to the surgeon and breast cancer nurse about surgery on Wednesday.  I probably won’t be blogging immediately after the surgery, not the least because they’ll be operating under my left arm (in the arm pit) and that means that typing and the like isn’t on the agenda for a few days.

I’ll state this up front – this whole thing seems so unreal.  I am not obviously sick, I do not feel sick.  Apart from some pain where the tumour apparently is against the chest wall, I don’t feel like I have cancer – whatever that feels like.  Wednesday is going to make the whole thing a lot more real, and that’s both scary and reassuring.  Scary because cancer is scary.  Reassuring because I do feel a little like an imposter right now, because I feel mostly fine (just stressed).

Anyway – today’s visit to the hospital had my blood test results completely normal (with slight vitamin D deficiency which is unsurprising as it is winter), and the biopsy coming back completely clear.  We went through all the process for the pre-op stuff, told how much it’s going to hurt (a fair amount), and how much I’m going to have to wait (a lot), and reassured about some of the side effects, like the blue dye that is used to trace the lymph node paths will stain my skin – that’s normal.

Also we went through some worst case scenarios, just so I was across them.  The nurse was impressed that I was so calm and in control – that is my default state, I will probably fall apart later – and that’s ok too.

So a week off work (this week) and possibly some time of work next week to ensure I’m healing well.  A further biopsy of the tumour after it has been removed builds the next step scenarios.  Best case, I have 4 – 6 weeks of radiotherapy a month after surgery, and then on a drug for 5 – 10 years.  Worst case, I have additional surgery and/or chemo before radiotherapy and medication for years.

Yes I’ll probably keep blogging about cancer, because writing stuff down helps me sort through it.  I do want to blog about other things to, and once I’ve gotten the big bits out of the way, I’ll probably go back to doing just that.

I do want to say how grateful I am to have been born in Australia and eligible, thanks to my citizenship, to access free healthcare.  All of this treatment will cost me very little.  The medication will be the most costly part.  The operation, radiotherapy, and consultation visits will be covered by my taxes and the paid taxes of other people.  This is a fantastic thing, and means that I don’t have to ask myself if treating possible cancer is something I need to do or is it something I can live with.  I do wish people in other countries without “socialised medical systems” could access the level of care that I will be accessing for the cost that I will be paying.

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Cancer update #1

So yes, I’ll be blogging about cancer from time to time, as a way to keep everyone updated, and to save me having the same conversation over and over.  Not that that is necessarily a bad thing, but I enjoy efficiency.

Today I had my appointment at the Royal Women’s Hospital to meet the breast surgeon, breast cancer nurse and find out more about the next steps.  I might have surgery as early as next week – which is much sooner than I anticipated.  The breast surgeon also wanted a biopsy of something that was noted in the first radiology report on my right breast just to be on the safe side, so I got one of those too.  It is most likely a regular, bog-standard lymph node, but the surgeon wants to be extra, extra sure because you shouldn’t mess around with cancer.

I was also told that the reason my tumour is so goddamn painful, is that it’s sitting on the chest wall – so that’s kinda helpful and still annoying.

I also need to get a blood test, but as I was insufficiently hydrated today, I’ll get that tomorrow after lunch.  Must go and get a glass of water.

This biopsy was far less painful.  I told the doctor performing it that I cried for an hour after the last one as it was so incredibly painful, so she made sure there was extra local anaesthetic and waited for it to take effect.  We also laughed a lot, which was nice, but weird when people are jabbing needles into you.  I don’t think they appreciated my joke that ultrasound gel is like semen in that it gets everywhere – and I probably should have self-censored that, but I have cancer, and some jokes get made.

So next steps are surgery (very soon), 6 – 8 weeks of healing (and hopefully no follow up surgery), 4 – 6 weeks of radiotherapy Monday through Friday, and then medication for 5 years.  This all assumes that my tumour tests negative to HER2, which I have an 80% of it doing so.

Just quietly, Breast Cancer information in Australia (at least) is incredibly cissexist.  Hugely cissexist, and it makes me uncomfortable.

How am I doing?  I’m pretty good right now.  Every now and again I feel overwhelmed with what’s happening and anxious – but that’s to be expected.  I like having plans, and knowing what’s going to happen next, even though some of that is a little nebulous and fluid because it depends on things we don’t yet know 100%.  I’m not particularly fussed about having scars on my breasts (something I used to think about as a kid anyway, because I liked the look of ritual scarification).  I am somewhat concerned about radiotherapy, because that sounds intense and annoying (but is also far enough away in the future for it not to be an immediate concern).  I am mostly ok with the idea of medication, I think I’ll be able to manage the common side-effects in a way that works for everyone concerned.

Also, outing yourself as non-monogamous at the hospital straight up is easy, particularly in Australia in the public health system in metropolitan hospitals (other areas may vary).  I brought both partners with me to the appointment, and made it very clear that they were my partners.  It was written in my file, along with my medical history, and everyone was cool with it. In fact one doctor said that I was lucky to have the extra support.

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So I’ve got cancer

I found a small lump in my breast, it was tender so I went and saw my doctor.  He sent me off for imaging, and then I saw a specialist who sent me off for a biopsy (that REALLY hurt).  Then I was told I had a very small (8mm) cancerous tumour in my breast.  I’m now an official member of the, “You’ve got cancer” club.  I’m not impressed.

I’ve found the cancer so early that I probably only need surgery, radiotherapy and Tamoxifen to treat.  This all depends on what the surgery and subsequent biopsies show really.  It’s a fun environment of, “Do A, then possibly do B or C depending on results of A”.  Being a big fan of plans, I plan to work out what is going to happen, how I will manage it, and what support I need.

This is a blog post (which may be updated as more info comes through, or new posts added, I’m not sure), which will outline what I want and don’t want over the next 6 months (as a starter).

Things I want

  • To keep working as much as possible
  • Snuggles
  • Chocolate
  • Plans
  • Shoulders to lean/cry on
  • Having meals cooked for me for those days I don’t cope
  • Understanding
  • Conversations with people who have survived cancer

Things I don’t want

  • Advice regarding natural therapies for cancer treatment
  • Being treated as if I’m going to fall apart any second
  • Being told to take time off work

Kvetching circles completely apply here.  This is my condition, my body, my issue.  Do not make it about you, do not make it about how you can feel better that the roll of the dice went badly at my end.  I have enough to deal with, without you making this about you. (This is not currently directed at anyone I’ve told, this is just case it needs saying).

I will continue to work, I will blog, I will study, I will cook, I will yoga, I will … because I enjoy these things, because they’re good for me, and because life goes on.

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